23andMe offers two data deletion options. "Account Closure" removes your profile and reports, disconnects you from DNA relatives, and prevents further participation in research. However, de-identified genetic data may be retained for internal research unless you specifically opt out. "Spit Kit Destruction" goes further, requiring contacting customer support to have your physical sample destroyed. While 23andMe claims anonymized data may still be used, they assert it can no longer be linked back to you. For the most comprehensive data removal, pursue both Account Closure and Spit Kit Destruction.
23andMe has filed for bankruptcy and CEO Anne Wojcicki has resigned. Facing declining demand for at-home DNA testing kits and a challenging market for drug development, the company struggled to turn a profit. The bankruptcy filing allows 23andMe to restructure its finances and potentially sell off assets, while Wojcicki's departure marks the end of her leadership at the company she co-founded.
Hacker News users reacted to 23andMe's bankruptcy announcement with skepticism, quickly identifying the article as satire published on April 1st. Several commenters expressed initial surprise before recognizing the date, while others pointed out the unrealistic nature of the claims, such as selling user data to CVS. Some found the satire weak, suggesting it wasn't particularly funny or clever. A few users discussed the actual business model of 23andMe, highlighting the shift from ancestry information to pharmaceutical research leveraging user data. One commenter noted the irony of the fictional bankruptcy coming shortly after 23andMe's actual recent layoffs.
Summary of Comments ( 5 )
https://news.ycombinator.com/item?id=43486236
HN commenters largely discuss the complexities of truly deleting genetic data. Several express skepticism that 23andMe or similar services can fully remove data, citing research collaborations, anonymized datasets, and the potential for data reconstruction. Some suggest more radical approaches like requesting physical sample destruction, while others debate the ethical implications of research using genetic data and the individual's right to control it. The difficulty of separating individual data from aggregated research sets is a recurring theme, with users acknowledging the potential benefits of research while still desiring greater control over their personal information. A few commenters also mention the potential for law enforcement access to such data and the implications for privacy.
The Hacker News post "How to Delete Your 23andMe Data" has a moderate number of comments, discussing various aspects of genetic data privacy and the complexities of truly deleting such sensitive information.
Several commenters express skepticism about the efficacy of 23andMe's deletion process, pointing out that true deletion of data is difficult, especially when it has potentially been used in aggregate analyses or shared with research partners. One commenter highlights the distinction between "individual data" and "aggregate data," suggesting that while 23andMe might remove individual identifiers, the underlying genetic information might still be retained and used in broader studies. This leads to a discussion about the inherent value of genetic data for research, and the ethical considerations surrounding its use.
Some comments also mention the potential legal implications of data retention, particularly in light of law enforcement requests. One user points out that even if 23andMe deletes the data, they may still be compelled to provide it if legally required. This raises concerns about the security and privacy of genetic information, even after a user requests its deletion.
A few commenters share their personal experiences with 23andMe's data deletion process, with varying degrees of satisfaction. Some report a smooth and straightforward experience, while others express frustration with the complexity or lack of clarity in the process.
The conversation also touches upon the broader issue of data ownership and control in the digital age. One comment questions whether individuals truly "own" their genetic data, given the complexities of data sharing and analysis within the scientific and commercial landscape. This leads to a discussion about the need for clearer regulations and greater transparency regarding the use of personal data, particularly sensitive information like genetic data.
Finally, some commenters mention alternative genetic testing services and their data privacy policies, offering a comparative perspective on how different companies handle user data. This provides a practical element to the discussion, allowing users to consider various options based on their individual privacy preferences.